You can reach us through a Yahoo! Mailing list, a facebook group, and an in-person support group (described below). We have also helped with the effort to pass patient rights legislation in Pennsylvania (2014 Act 83), and are always looking for volunteers who can help us to improve patient education resources in Pittsburgh.
In-Person Support Group: Our group meets to allow others to share personal stories, to help answer any questions, and to share information about things that have helped us.
We meet on the second Tuesday of every month from 6-8PM, at Monroeville Senior Citizens Center.
The address is:
6000 Gateway Campus Blvd,
Monroeville, PA 15146
Meetings are also announced on the Yahoo! Mailing list.