I had the privilege of meeting a wonderful infectious disease doctor here in Pittsburgh this week. She treated me as an intelligent person who deserved a say in my own care, and was willing to talk about and even consider the possible value of additional antibiotics. We ran tests to try and verify one or more of the hypotheses I’ve been talking about in my blog, and also discussed the role that my December-February 2006/2007 mold exposure may have played in my illness.
Wonder of wonders she then had the kindness to respond to some questions I sent her by email a few days later, by which time she had (1) read an article I mentioned to her as possibly suggesting the value of antibiotics and (2) had most of my test results back. She answered my questions and discussed both the article and my test results in the email and included a table with the full details. I was amazed and grateful.
Suddenly the picture seems much clearer .. and perhaps also more complex. The test results pretty conclusively say that I don’t have an auto-immune disease and that I have lyme disease. I was shocked by the latter, it is not supposed to be possible after the sort of antibiotic treatment I had, but the IgM (the test which shows current, active infection) was positive on my western blot, and in fact included markers that are highly specific to lyme. As expected, the IgG (which shows past exposure) was also positive.
I have begun researching mold in any case and have some questions about how it may have contributed or may be contributing to my situation. But the case seems very clear for a specific explanation of many if not all of my symptoms: the IgM test tells us that I still have an active infection. My gut was right.